My niece received exciting news today! Her Make a Wish request has been granted!
She will be flying to LA on Monday morning to meet the cast of Glee…and she is sooo excited! There are many more fun details in this adventure…but we will have to wait for her return to get the scoop. 🙂
“The Make-A-Wish Foundation® grants wishes to children between the ages of 2½ and 18 years who have been diagnosed with a life-threatening medical condition. Because hospital visits are not fun, because medication is yucky, because being sick sometimes hurts, the Make-A-Wish Foundation of Minnesota wants to be there for each child, no matter the situation, to help brighten a difficult journey with moments of joy, surprise and laughter that create special life-long memories.”
You see, my sweet niece Avalon lives with Cystic Fibrosis, an inherited chronic disease that affects the lungs and digestive system. She has been doing daily treatments since she was just one month old…and she will continue with these treatments for the rest of her life…or until a cure is found. Treatments consist of numerous medications and antibiotics taken through a nebulizer, combined with wearing an inflatable vest that is attached to a machine that vibrates. As the vest vibrates the chest, mucus is thinned and loosened. Every five minutes she stops the machine and coughs to bring that mucus out of her lungs. In addition to these daily treatments (which increase whenever she gets sick), she needs to eat a high calorie diet and take pancreatic enzymes with every meal and snack. Every single day. It is simply a part of her life.
Yet, the positive attitude and optimistic outlook she has is a gift to all who know her. She radiates with kindness and love. She sets goals and dreams and does not let things stop her. She does not complain when most teenagers are whining about the little things in life. She studies, she hangs out with her friends, she travels, she sings, she dances and dances and dances. And she does treatment. CF does not define her. She is a beautiful young lady that is enduring a really crummy disease. I am soooo proud of her. May her wish be wonderful!!!