make a wish.

My niece received exciting news today!  Her Make a Wish request has been granted!

She will be flying to LA on Monday morning to meet the cast of Glee…and she is sooo excited! There are many more fun details in this adventure…but we will have to wait for her return to get the scoop. 🙂

“The Make-A-Wish Foundation® grants wishes to children between the ages of 2½ and 18 years who have been diagnosed with a life-threatening medical condition. Because hospital visits are not fun, because medication is yucky, because being sick sometimes hurts, the Make-A-Wish Foundation of Minnesota wants to be there for each child, no matter the situation, to help brighten a difficult journey with moments of joy, surprise and laughter that create special life-long memories.”

You see, my sweet niece Avalon lives with Cystic Fibrosis, an inherited chronic disease that affects the lungs and digestive system. She has been doing daily treatments since she was just one month old…and she will continue with these treatments for the rest of her life…or until a cure is found. Treatments consist of numerous medications and antibiotics taken through a nebulizer, combined with wearing an inflatable vest that is attached to a machine that vibrates. As the vest vibrates the chest, mucus is thinned and loosened. Every five minutes she stops the machine and coughs to bring that mucus out of her lungs.  In addition to these daily treatments (which increase whenever she gets sick), she needs to eat a high calorie diet and take pancreatic enzymes with every meal and snack. Every single day.  It is simply a part of her life.

Yet, the positive attitude and optimistic outlook she has is a gift to all who know her.  She radiates with kindness and love. She sets goals and dreams and does not let things stop her.  She does not complain when most teenagers are whining about the little things in life.  She studies, she hangs out with her friends, she travels, she sings, she dances and dances and dances.  And she does treatment.  CF does not define her.  She is a beautiful young lady that is enduring a really crummy disease. I am soooo proud of her. May her wish be wonderful!!!

 

9 thoughts on “make a wish.

  1. That is an amazing story. Hopefully I will get to meet her at one of the Make a Wish Events or photo shoots. ❤
    Please post more about her time in LA when she gets back!

  2. Oh Sara you have such a beautiful way with words! So excited for Avi & the whole family! Love the pictures! Cant wait for the updates!

  3. Avalon is an amazing girl! The positive attitude she has with everything she does is inspiring. I can honestly say I wish i could bottle her attitude for those days I find myself down on life. We love ya and hope the cast of Glee realize what we all know, that Avalon is an Angel!!

  4. I have had the privilege of watching Avalon grow into a beautiful young lady. I am not a family member, or even a dear friend, just a community member in awe of this fighter. I have watched her dance (she is amazing), fund raise and smile threw all. Avalon, Have a blast in Hollywood!!!

  5. Thanks for honoring Avalon in such a special way. I got a little misty as I was reading it. Sometimes I kind of forget all that she has gone through in her life because she has such an amazing attitude about it all. I am sure we will have lots of photos and stories to share when we get back home.

  6. Love this, and love HER! Avalon is so inspiring and she has really taught me how to be grateful for the little things in life. I honestly cannot believe i was blessed with such an amazing best friend. I hope her week is full of total and utter AWESOMENESS. 🙂 Love you Avi! Have a great week- and thanks Sara for posting this 🙂

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